Our Bodies, Ourselves (106 page)

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Authors: Boston Women's Health Book Collective

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Some people are concerned that PGD is being or will be used not only to detect serious medical problems but also to detect a whole array of undesirable attributes or to select for gender or certain physical characteristics or the ability to perform well in sports or music. The American Society for Reproductive Medicine (ASRM) uses different terms for the procedure depending on how the procedure is used. The term PGD is used only when the procedure is performed on embryos from men and women who are known to carry a serious hereditary condition. ASRM uses the term “preimplantation genetic screening” (PGS) to describe the same process when it is done to search for mutations or other traits. ASRM recommends the use of PGD but says that the evidence is insufficient to know if PGS is useful and does not recommend it.

Many people worry that PGD and PGS may fuel eugenic tendencies and make it harder to preserve a society in which people with disabilities will be fully valued for who they are.

The procedure does not appear to have any effect on overall pregnancy rates for IVF. It generally costs an additional $5,000.

COLLABORATIVE (THIRD-PARTY) REPRODUCTION

One thing I find runs through my head (completely unbidden) is that I am a bad feminist for lamenting the fact that I can't have biological kids; that I know well enough that there are many nontraditional ways to have families that are not lesser than biological families (I have a three-year-old brother adopted from the foster care system, so I have firsthand knowledge of this) and that I need to get over this. But having that option removed feels like a violation of my body by my body, if that makes any sense. Feeling this, feeling like a bad feminist—these are uncomfortable places to dwell in
.

The phrase collaborative or third-party reproduction refers to the process when another person provides sperm, eggs, or embryos or when another woman provides her uterus so that a family can have a child. The donor's or surrogate's involvement is limited to the reproductive process and does not extend to raising the child. Collaborative reproduction is complicated and involves a number of important considerations to ensure a safe and successful experience.

Donor Sperm

Insemination with donor sperm involves using the sperm of a man who is not your partner to conceive. Families interested in donor sperm can use a known donor (a friend or relative) or find an anonymous donor through a sperm bank.

Sperm from sperm banks have been tested for numerous infections and genetic diseases. Usually you can find out basic information on potential anonymous donors, including their physical characteristics, ethnic and/or racial background, educational level, and career. You may also be able to read a personal profile on the donor and see a photo.

IN TRANSLATION: ART IN BULGARIA

Group:
Women's Health Initiative in Bulgaria

Country:
Bulgaria

Resource:
HaШeмо мяʌо Hиe caмимe (Our Body, Ourselves), a Bulgarian edition of
Our Bodies, Ourselves

Website:
ourbodiesourselves.org/programs/network/foreign/

In Bulgaria, it's considered a woman's duty to bear children, and assisted reproductive technologies are widely used by infertile couples. With eighteen clinics in the country and more on the way, women spend years saving money for the treatment and navigating the health care system to learn more about different treatments, risks, and outcomes.

As the demand for these services increases, Women's Health Initiative in Bulgaria (WHIBG), an OBOS partner that published an adaptation of
Our Bodies, Ourselves
in 2001, reports that women's health care activists have successfully advocated for better regulation of treatment procedures and government subsidies for women unable to afford care. In 2009, almost one-quarter of the 6,000 couples who underwent in vitro procedures received monetary assistance from the Bulgarian government.

In addition to being concerned about safety and access, WHIBG is researching the context in which women decide to seek assisted treatment. The organization notes that the majority of Bulgarian women feel that assisted reproductive technologies embody hope and empowerment, despite the emotional and physical risks they might face. As a result of these attitudes, WHIBG makes policy recommendations to decrease the stigmatization of childlessness and to ensure that women can access the resources they need to exercise their full range of reproductive options.

The cover of the Bulgarian adaptation of
Our Bodies, Ourselves.

WHIBG is also drawing attention to how a deregulated health care system,
combined with a socially biased view of motherhood, leads to problems with care and has underscored the importance of providing emotional support to women undergoing treatments. Due to WHIBG's work, several clinics have been encouraged to include psychologists on their infertility treatment teams.

Success rates vary based on your age, past pregnancy history, and infertility diagnosis (if you have one). Costs associated with sperm donation vary greatly from a few hundred to several thousand dollars, depending on the process you plan to utilize, which fertility clinic you are being treated at, and whether you use a known or anonymous donor. Because no one keeps track of sperm donation, it is not known how many children have been born through donor sperm over the years.

Donor Eggs

Conceiving a baby via egg donation is becoming increasingly common, with more than ten thousand women and families using donor eggs each year. Egg donation allows the possibility of becoming pregnant through the use of another woman's eggs. It is most often used by women who experience primary ovarian insufficiency, age-related infertility, poor egg quality, unexplained infertility, or disorders that may be transmitted genetically. Once a donor's eggs have been retrieved and fertilized by your partner's or donor's sperm, any resulting embryos will be placed either in your uterus or in the uterus of a gestational carrier.

Because the eggs of healthy young women are used, success rates are usually over 60 percent for most clinics. Babies born through this expensive procedure—often totaling between $30,000 and $40,000—are not genetically related to the woman who bears them. Coming to terms with this modern phenomenon can be difficult, as it means accepting that you will likely never conceive your own biological child.

You and your partner, if you have one, the fertility clinic, and/or an independent egg donor agency may work together to locate a potential donor. Sometimes a relative or friend will offer to donate her eggs. In some lesbian relationships, one partner may donate the egg and the other serve as the birth mother, enabling both women to have a biological connection to the child. In most cases, however, egg donors are unknown to the recipient family.

Regardless of how you find your egg donor, it's important she be properly screened, both physically and emotionally. An egg donor should be between the ages of 21 and 30, healthy, and fertile. She will also need to have a thorough psychological screening to identify any emotional problems, evaluate her motivations for donating, and verify that she understands the physical, psychological, and legal risks. It's imperative that you consult an attorney who specializes in egg donation to ensure that all involved are protected.

I felt like an eggless sociopath for even considering asking one of these young women if I might purchase their eggs. How and why do they decide to sell their eggs to someone like me? How do the donor agencies and these young women determine that their eggs are worth $8,000 while someone else's eggs are worth only $5,000?

Egg donors are paid a fee typically ranging anywhere between $5,000 and $10,000. There are also many ads advertising compensation
above $20,000 and even a few approaching $100,000 for young women with very specific desirable characteristics, such as proven fertility, certain physical characteristics or ethnic backgrounds, attendance at prestigious colleges, or high SAT scores. The egg donor fee is intended to compensate the donor for all costs associated with the time and energy needed for donating her eggs, including undergoing medical and psychological screenings, taking drugs to hyperstimulate her egg production, and undergoing a sedated surgical procedure to retrieve the eggs. Almost all egg donor programs encourage anonymous egg donation, although it's possible for you to meet the egg donor in some cases.

WORKING WITH A DONOR OR SURROGACY AGENCY

The donor and surrogacy industry in the United States is a more than $38 million a year industry that is growing by 6 to 8 percent each year.
7
Currently, there are few guidelines or monitoring for sperm donors, egg donors, or surrogacy agencies. Anyone, regardless of background or credentials, can recruit potential donors or surrogates and charge a fee to match them with intended parents.

As a result, there is great variability in these types of agencies, what they offer, and how much they charge. Agencies range from Internet-only sites to brick-and-mortar offices run by lawyers, health care professionals, well-intentioned former infertility patients, or previous donors or surrogates.

If you are choosing to pursue egg donation, it's important that you carefully evaluate any agency you are considering working with. Ask about its experience and credentials. Request references and talk with former donors, surrogates, and intended parents. Understand the agency's donor or surrogate recruitment, selection, and payment policies, as well as all costs that you will be responsible for. The agency should have strong relationships with local fertility clinics, mental health professionals, and attorneys specializing in reproductive law and be well respected within the field.

Compare several agencies so you can recognize any differences or red flags. Above all else, agencies offering third-party reproduction services should be open, honest, and ethical, committed to protecting the interests of donors, surrogates, and intended families.

Because these procedures carry some health risks, and because the long-term risks of egg donation have not been adequately studied, egg donation raises ethical concerns. Some people believe that while it is acceptable for a woman who desperately wants to become pregnant to accept the health risks involved, it is exploitive to encourage women who receive only money and not a potential baby to donate eggs, especially when there is not sufficient information available to make an informed choice.

Surrogates and Gestational Carriers

A surrogate is a woman who is willing to be impregnated using IVF and carry a baby for the intended parents to help them build their family. Surrogacy is most often considered a family-building option among women who have lost their uterus, were born with a uterine anomaly
that would make carrying a child exceedingly difficult, or are unable to carry a pregnancy to term for other health reasons.

EMBRYO DONATION

Some couples that become pregnant through ART treatments may end up with additional frozen embryos. Many couples opt to freeze the remaining embryos, particularly if they hope to have additional children, but some decide to donate the embryos to other families who have not been successful conceiving. The donated embryos are then transferred into a woman's uterus using frozen embryo transfer.

Embryo donation is also chosen by many families who are unable to afford IVF or egg donation. Embryo donation is available at some fertility clinics and is typically less expensive than other types of ARTs. The embryo donor receives no payment for the embryo; however, you must pay the clinic or agency for storing the embryo, testing the embryo, and transferring the embryo into your uterus. These procedures cost about $3,000 to $5,000 per transfer. Only a few hundred children have been born via embryo donation so far, and the success rates are not yet known.

If you choose to use donor embryos or to donate your embryos to another family, you will need to investigate the legal implications involved. You should consult an attorney specializing in fertility as well as a mental health professional knowledgeable about the complex facets of birthing a child with no genetic tie to either parent. For an up-to-date and helpful legal reference book, see
Legal Conceptions: The Evolving Law and Policy of Assisted Reproductive Technologies
by Susan Crockin and Howard Jones.

There are two types of surrogacy: traditional and gestational. Traditional surrogacy is when a woman offers to use her own eggs
and
carry the child as well for the intended parents, thus maintaining a genetic connection. A gestational surrogacy is when an egg (from a donor or the intended mother) is fertilized outside the body and then implanted into the gestational surrogate, who has no genetic connection to the child. In both cases, a woman goes through a pregnancy and bears a baby destined for another person or couple.

A surrogacy pregnancy can easily cost over $100,000, including agency fees, escrow fees, attorney fees, insurance, medical bills, medical and psychological testing, clinic fees, cycle medications, travel, missed work, surrogacy compensation, and any miscellaneous expenses. Depending on the state, once the baby is born the contracting parent(s) must legally adopt the child, making appropriate legal counsel imperative. A surrogate is typically compensated between $25,000 and $35,000 for her time, inconvenience to her own life, and all expenses associated with pregnancy and childbirth. Some surrogates develop lifelong relationships with the families they are helping, even exchanging periodic updates and pictures of the family they helped build.

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