Authors: Ellen Hopkins
work on floor-to-wheelchair transfers?
“Really? That's the best you can do?
Aren't you even going to ask if I'm okay?”
I'm not really pissed, and he knows it.
Will that make you feel better? Okay,
you okay, Cody? Now shut up and get
to work. Pull the chair up behind you,
and lock the wheels this time. Right
hand on the chair frame, left flat on
the floor. Remember, the farther
forward your head goes, the higher
your ass goes. One. Two. Three.
That's it! First try. Now, the other way.
For ten minutes. Floor to chair.
Chair to floor. When he says I
can quit, my arms are sore and
I'm winded. “Damn, man. I need
aerobic exercise. I feel like a smoker
on a bad air quality day in Beijing.”
I hear that's every day in Beijing.
Until you get there, you'll be able
to work out your lungs at the new
hospital. By the way, I went to school
with one of the PTs there. Mandy's hot.
I figured you'd appreciate it if I made
sure you'll get to work with her.
She doesn't take shit, either.
You're a match made in heaven.
“Are you saying I give you shit?
Okay, maybe I do sometimes.
But no more than you deserve.”
Federico tsks.
Listen to you. That's
the thanks I get for the vast amount
of hard work I've invested in you?
“Dude. Who's doing the work here?”
Wow. Despite his grumbling,
I think I'm going to miss this guy.
Carolyn comes in dressed in zebra-
striped scrubs. “Interesting pattern
there. Enough to cross my eyes.”
I thought it might distract you
while I take out the Foley. You
still want it removed, yes?
I nod. Since I've been here,
a Foley catheter has resided
in my penis, automatically
draining urine into a bag beside
the bed. After an SCI, two things
can happen to your bladder. Either
it will empty itself, all on its own,
and whether or not you want it to
(jeez, just picture
that
, out on a date
or something!), or it doesn't know
when
to go, and you've got to remind
it. After a thorough workup, my doctors
concluded my bladder is the second
kind, and I've got to encourage it to
empty several times a day. I want to be
mobile, which means I'll have to insert
a tube into my joystick (not that it's so
joyful anymore) so I can use a toilet
instead of wearing a piss bag on my leg.
At least, I'm going to give it a try.
Carolyn extracts the Foley. Not sure
if it would hurt if my urethra could
feel something, but it can't, so there's
zero pain. Once, the process would
have embarrassed me, but I've kind of
gotten used to health-care professionals
poking, prodding, manipulating,
and otherwise studying my not-so-
private parts. Once upon a time,
that might have turned me on.
Maybe it still does, not that I'd know
without looking, and that would be
perverted. Carolyn gives nothing
away.
Okay. Now I'll show you
the do-it-yourself routine. Always,
always, wash your hands before you
touch anything. That's good advice
for everyone, but for you, it's imperative.
Last thing you want is an infection.
As always, she is matter-of-fact, and
that's exactly how she demonstrates
intermittent catheterization.
So much to understand
about the myriad ways
my life has changed.
I'm still swinging between
denial and acceptance, but
the former comes less often.
Before the incident, I knew
a little about SCIâI watched
Superman movies when I was
a kid, and heard the guy
who played him fell off
his horse and wouldn't ever
go flying again. Now,
the Christopher & Dana
Reeve Foundation is a font
of information on SCI, not
to mention a funding stream
for nonprofits that provide
services to people like me.
So thank you, Superman,
for your personal sacrifice.
I've learned a lot from
the foundation's website
and others like it, and what
the best of them offer
is not only resources, but
the knowledge that I'm not
alone, and that other people
with injuries much worse
than mine have risen above
denial, and even acceptance,
all the way to proving common
wisdom about spinal cord injury
wrong. It was Ronnie who
introduced me to them. Ronnie
who brought me a laptop
to investigate them. I'd pawned
my own when things began
to cartwheel out of control.
I asked if she didn't need
her laptop for school.
She said not to worry, her dad
would get her another one.
Wonder if he'll get pissed.
Wonder if he knows what
happened to the old one.
Wonder if he knows
what happened to the old me.
To check on out of hereâmy hospital
home away from home for months.
Ronnie comes in with some clothes.
Got these from your mom. She'll be
here in a while to sign you out.
She would've brought them herself . . .
“Is there a âbut' attached to the end
of that sentence?” Ronnie moves
closer, looks at me with concerned
eyes. Eyes the shade of . . . violets?
“Purple contacts? That's, um, unique.”
Ronnie changes eye color regularly.
She grins.
Yeah. They make me look
exotic, don't you think?
Now she grows
serious.
Anyway, I guess they're releasing
your brother from detention. Your mom
had to take care of some paperwork.
Meanwhile, I can help you get dressed.
Cory. Man. I've been so focused
on myself, I've hardly even thought
about him. “Jesus. Has it been that long?
Poor Mom. Like she deserves something
else to worry about.” Hospitals. Lockup.
Paperwork. Bills. Her job. And now,
trying to keep Cory in school,
and out of the liquor cabinet.
“Mom's going to need my help.”
Yep. And the best way to help
her at the moment is for you to get
dressed and check into the new
facility. This is prime time for you
to get stronger, and they are experts
at that. By the way, Vince dropped
your car off and Leon says he can
have it finished in a couple of weeks.
You'll be on the road again in no time.
On the road. Freedom. A measure
of independence. Except . . . “Ronnie,
I don't know how we'll pay for it.”
Don't worry. It won't be that much,
and I've been looking into grants.
If all else fails, we'll crowdsource it.
“Have I mentioned you're an angel?
A stubborn, demanding, purple-eyed
angel? And have I told you lately
how very much I love you? More
and more every day. Kiss me. Please?”
My angel kisses like she's possessed.
I'm out of the ridiculous hospital
gown and comfortably dressed,
Mom hustles in, worry evident
on her face. “Everything okay?
What's up with Cory?” Ronnie
excuses herself in case the conversation
should remain private. Mom waits
for her to go, then says,
He's out, in
an intensive supervision program,
meaning he has to wear a monitoring
device and submit to regular drug tests.
To qualify, he has to reside within
GPS range and attend school at
the detention center, plus there's
a community service requirement,
so it looks like you're safe from
Kansas, at least for the near future.
I don't know, Cody. Cory's distant.
Sullen. I'd hoped the experience would
make him appreciate what he has,
but I think it only made him colder.
Yeah, lockup will do that to a kid.
“Give him time, Mom. He'll come
around.” I hope. “Where is he now?”
Home with his ankle bracelet.
I asked if he wanted to visit you,
but he said no. He's scared to see
you, not that he'd admit it. Under
that tough exterior, he's a child,
and the idea of your disability
is hard for him to accept. In his
eyes, you've always been invincible.
If you're not, he isn't either.
“Makes sense, I guess.” Little shit.
If I can put up with it, he'd better.
“You sure he's okay alone?”
Not really. But life has to go on,
doesn't it? Best I can do is support
him, and let him know I love him.
Man, she looks beat down.
I wish I knew how to help her.
“Hey, Mom? As soon as I get out
of the rehab hospital, I'll find
a job. We'll make this work, one
way or another, okay? I want you
to be able to rely on me, the way
I've relied on you.” No pressure
there, Cody. None at all.
By Carolyn, Federico, and Doctor
Harrison, who's taken time from
her busy schedule to say goodbye.
I demonstrate a bed-to-wheelchair
transfer, brakes on, and everyone
seems suitably impressed, including
Ronnie, who has joined the farewell
party. She helps Mom gather my few
belongings as Carolyn hands me
a paper sack.
Disposable catheters
and a cupcake.
I peek inside the bag.
She isn't kidding.
I expect updates.
Federico hugs me.
I'll be stopping
by to check up on you, not to mention
Mandy. Did I tell you she's hot?
“Hey, dude. My girlfriend's standing
right there, you know, and she's got
one hell of a temper.” The mood is light,
but the implications of my leaving
are sobering. I've largely been taken
care of here, and while I'll still have
plenty of help in the coming months,
I have to stand up (figuratively, if nothing
else) and take responsibility for my future.
Who's determined to show me
wheelchair-to-automobile transfers,
I maneuver said chair down the corridor
and through the door into the parking
lot. “Oh, man. It's bright out here!”
I've been under artificial illumination
for so long, my eyes fight accepting
the mild December sunlight. City
fumes hang heavily in the tepid air,
but beneath them is a the smell of
desert, much better than antiseptic.
Mom's cramped car won't accommodate
me comfortably. Ronnie's new SUV
is a better fit, not to mention a surprise.
“When did you get this? It's sick.”
Three weeks ago. Daddy said
my old car was an embarrassment.
What was I going to do, argue?
Federico laughs.
I want a daddy
like yours. Is he into adoption?
He oversees the transfer, watches
me buckle myself in before
shaking my hand.
You're gonna
do great. Go kick some ass.
It's a phrase tossed around
thoughtlessly, but as we weave
through streets, familiar and not,
I ponder it. Cory kicked some
woman's ass for no real reason
other than he could. I doubt
getting his own ass kicked by
the system mitigated the wide
stripe of mean inside that boy.
That bastard Chris kicked my ass
before his bullet kicked it worse.
Kicked it forever numb. Ronnie
pulls up in front of a modern
stucco building, rolls my wheelchair
around the side of her new car.
I manage the transfer unaided
and we go inside, where it smells
like fresh fir thanks to the tall
Christmas tree in reception.
After Mom signs the admission